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Aidan's Law


Every 36 hours

a baby in America

is born with ALD

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Aidan's Law


Every 36 hours

a baby in America

is born with ALD

 

Adrenoleukodystrophy (ALD) is a deadly brain disease most severely afflicting boys. As young as age 4 it silently begins ravaging their central nervous systems. Doctors often misdiagnose ALD for months, even years. The result is blindness, deafness, seizures, dementia – leading to paralysis or death

 
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Lost to ALD


The facesof ald

Our boys, Your Boys

Lost to ALD


The facesof ald

Our boys, Your Boys

But there’s a solution
Newborn screening

And there’s a Law
Aidan’s Law

Before Congress


It’s before congress
right now

If enacted it will require (and fund) newborn screening of ALD in every U.S. state. Tell Congress to vote YES! on Aidan’s Law.

about aidan's law

Before Congress


It’s before congress
right now

If enacted it will require (and fund) newborn screening of ALD in every U.S. state. Tell Congress to vote YES! on Aidan’s Law.

about aidan's law

We can do this.

 
 
2

States recently
began screening
newborns for ALD

 

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53

Babies have tested
positive for ALD –
53 #LivesSaved

 

A few #LivesSaved from recent ALD testing in New York and Connecticut.

 
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New York spends less than $2.50 per baby to test for ALD

That’s less than the national average cost of a cup of coffee.

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Screening requires a drop of blood from a baby’s heel

But no new blood is drawn – ALD is added to existing lab tests.

US map

Shouldn’t all states in the US screen their babies for ALD?

There will be 248 #LivesSaved per year once they start.

 

MAKE IT HAPPEN.